SBKC is ran by a volunteer board who meets monthly to plan and organize events. It is a hard job, but we are driven by our love for the spina bifida community! Currently, the bord is comprised of four voting members; Chairman, Vice-Chairman, Secretary, Treasurer. It also consist of numerous non-voting board members.

Spina Bifida Kansas City (SBKC), formerly Spina Bifida Association of Kansas City, was founded in 1977 by a group of individuals with Spina Bifida and family members of children with Spina Bifida. From the begging the mission of the organization has been to support and advocate for those living with the challenges of Spina Bifida.

SBKC offers social events held throughout the year. Our goal is building friendship and comradery between families and individuals.