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Who We Are

Spina Bifida is the predominate permanently disabling congenital disability in the nation.
Spina Bifida Kansas City is made up of children and adults with Spina Bifida, as well as parents, guardians, family, friends, healthcare providers, and other supporters. Starting very early in life, our children spend significant amounts of time in clinics and hospitals. Frequent medical tests, surgeries, visits to therapists and specialists, and hospitalizations are common. SBKC is dedicated to helping families affected by Spina Bifida emotionally, educationally, and financially. Financial support is given to families through a number of funds. Emotionally we offer support through organized social functions, fundraising events, chapter meetings, educational programs, and our office staff.

Spina Bifida Kansas City (SBKC) is dedicated to:
Fostering and promoting the rights and well-being of all persons with Spina Bifida.

Encouraging care, treatment, education and social interactions of all persons with Spina Bifida and their families;

Raising the level of awareness in ourselves and others as to the nature of the particular and special needs of all persons with Spina Bifida.

Who We Are
SBKC’s mission is the continuing education of the membership and general public concerning the cause, care and treatment of persons born with Spina Bifida. SBKC shall develop the financial capacity to aid persons born with Spina Bifida to lead a full and productive life by providing financial assistance for medical equipment and hosting of education and life skill building programs.

2017-2018 Board of Directors:
Chad Tucker – Chairman
Brett Cox – Treasurer
Christina Benson – Secretary
Jillian Dempsey – Event Coordinator
Brecklyn Findley – PR
Carol Hafeman – Professional Advisor



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